[ EMF-Link Home
| Online Store
| Comments
| Up One Level ]
October 02, 2003 - Lora Jennifer- My son is having the same problems only it doesn't affect his eyes. The left side of his face and his tongue spasm for about 1 min to 1 1/2 minutes, and he says he can feel when its going to happen. Did you have any luck with your daughter? My son is 7 and this has just started too.
September 23, 2003 - Jennie Responding to Jay and Stephanie in 1999. My daughter started having grandmal seizures from the age of about 12 (she's now 21). They occur as she is coming out of sleep, at intervals of anything from 2-3 weeks to a year or more. So far she has not had medication for this. I wonder if it's worth risking the side effects of medication. Does anyone know of anything that could be causing this type of seizure?
June 03, 2003 - Rose I have a 20 year old boyfriend who suffers from Epileptic seizures, such as: staring blankly with loss of consciencess, dry mouth and twitching of facial and body muscle. He's taking medication called thenobarbipar. He's told me that it's caused by sleep dreprivation, stress, excessive heat. But I can't figure out how he first got it. He got discharged from the army because of it. If anyone can help me research on it, that will be highly appreciated. thanks.
April 30, 2003 - Carolyn My son Sean has been suffering with seizures for 35 years, at first he had grand/m, and for the past 5 years have been suffering from Gestault Sydrome, which has the strangest seizures I have ever seen. He shakes from head to toe, he screams help me, and shakes and shakes, he is conscious. Many health care providers tell me they are not seizures when that is what they have been diagnosed as. Sometimes they don't want to give him the adavan that calms them down. All I am doing is fighting with medical staff. He has had four seizures today and is in the hospital, they are having a real bad time trying to stop them. I really don't know where all of this will end. But this Gestault business is awful. Carolyn
April 30, 2003 - Beth I need some serious help. My mother has been having seizure like reactions to foods, chemicals, weather patterns, perfumes, pain, loud noises, flashing lights, movement in her peripheral vision, etc. for over 10 years. She is now seeing a neurologist. I need to know if there is anyone else out here like this and if so, can you help or just share your story? This completely disables her and I just want to see her have the normal life she used to. I actually can barely remember that though. Please let me know if you have any experience or stories of others like this you know. Thanks, Beth
April 16, 2003 - Shirley I have a 27 year old daughter. Dusty had been doctoring for a cold. On June 10, 2002, Dusty was feeling great getting ready to go back to work. By 1PM her head started hurting and her speech was slurred. She called me at work. After rushing home and finding her unable to talk or write, I drove her to the nearest hospital. They then tranferred her to another hospital. She was unconscious and swelling had set in. She was on a respirator, feeding tube, IV"S(10) for 10 days. When she awoke she knew nothing. Just like a first grader. She had to learn all over again. Dusty, was in there for OT-PT-ST. We all thought she was doing great until Feb 16, 2003. She had her first seizure. Her doctor and PA put her on zongram 300mg. This affected her speech. So, the doctor put her back to 200mg. Then another seizure (we think) came on. This one took place at work. Her doctor said this was a TIA. Now she gives her permission to drive. Well that didn't work out very good. When we finally got back into her PA (she is upset because Dusty was granted permission to drive). She increased Dusty's medicine to 300mg. Dusty, is lost, tired, stays at home, doesn't sleep among other things. She asked for a second opinion. She wants to go to Cleveland Clinic I hope this proves to help her so she can go back to work. Someone else told her it could be the lighting at work that put her into an attack. Is that possible? Please help.
April 09, 2003 - Joni My daughter is 14 and started having seizures four months ago. They last approximately 1 - 1 1/4 hours on average and she has at least 5 per week. Some are with severe convulsions and always the eyes are crossed and see double. She can only make noises and most of the time she can remember but just not communicate. My question is, do all seizures show up on an EEG loud and clear? These seem to be complex partial seizures. Also, do doctors prescribe seizure meds for psuedo seizures?
February 06, 2003 - Cathy Dawn- I just wanted to say that I'm a mother of an autistic son also. He's 12yrs. old and also has seizures. It started at the age of 8 yrs old. One day my Mom and I were sitting down watching tv and out of nowhere he fell to his feet but got up. So we just said be careful and thought nothing of it. Than it happened again and again so I made a comment to my mother. I said that boy, he must have two left feet and again paid it no mind, but as the days went by the drop to his feet were no longer a drop to his feet. It became throwing him off his feet on to his back and hitting his head on the floor. I didn't like what I was seeing so I took him to the doctor. I tried my best to explain it to the doctor but he wasn't understanding me, but right when he ask me to explain it again my son was thrown to the floor. The Doctor look at me and said seizure. I'm like what, he said your son been having seizures and that's not good. He then refered him to a neurologist who started him on his meds and EEG tests. He's been on 6 different kinds of meds since the seizures first started and is now on 4 kinds of (topamax, valium, tegretol, and zarontin) meds. Just Jaunary 24, 2003 he started with nose bleeds doing seizures and I don't know what's going on now because we now have to see a new neuologist due to the fact that his old neuologist is no longer seeing him. So I won't know anything until March 4. Just wish I can have some answer now to ease my mind. Like is this normal or not.
December 23, 2002 - Dawn What I know about seizure disorders. My son has had seizures since 1 year old. As the child grows medication will need to be increased if breakthrough seizures occur. My son is now 13 and going through puberty which can (and is) causing problems with the way his medication binds in his system and how effective it is. We recently changed him from Tegretol to the Tegretol XR for extended release which means he takes it twice per day instead of 3 times. He had a breakthrough seizure this weekend so the neurologist switched him to a capsule version of the XR which apparently is easier for some people to breakdown. I was told by the neurologist that the definition between seizure disorder and epilepsy is political. My son had a seizure disorder for several years and now it is called epilepsy. Seizure disorder can be used for one or more seizures but is legally less restricting than Epilepsy. Epilepsy means more than one seizure and once someone has this diagnosis they cannot get a drivers license so I guess the neurologists do not give this diagnosis at a young age in case the patient outgrows the disorder. My son used to have probably one seizure per year until recently (due to puberty) if your child starts having more seizures as they grow it is probably due to the rate of growth and the changes that are occuring in their body chemistry. The medication binds itself to things in the blood system (proteins I think) and when they go through puberty the chemistry changes and the medication may not be able to bind. I am assured by the neurologists that even though the seizures look very painful the patient is actually in a black out state, they don't feel it and are in effect asleep. The electrical activity in the brain is causing the muscles to twitch, etc. I guess people who have seizures don't even know they have had one. They are just very tired. Which is a comfort to me. My son is Autistic and does not speak so I can only hope that this is so because I cannot ask him what he is feeling. I know that it is diffcult to find the right medication and the right amount to do the job, be patient and work with the physician, make sure to tell them about changes in the way the seizures look and tell them when you don't feel things are working right. I have Diastat (valium) rectal gel to help stop my son's seizures. If you live in an rural area it may be difficult to get your child to the hospital quickly, (if required) but if you are willing to insert the gel rectally you can (hopefully) stop the seizure quickly and save their bodies some stress. This is kind of nice to have around "just incase" the seizure does not stop within 5 minutes by itself. It is insurance. Good Luck
December 18, 2002 - Jennifer I am not sure what is wrong with my daughter. She is 7 and just recently had a severe one-sided facial spasm, she could not speak and her eyes were dilated and bugging out of her head. This lasted about 1 to 1 and 1/15 minutes long and when she came out of it, she said that she had had that sensation before! I did not witness the prior episode. I have no idea if that was a seizure or not. She is going through testing but that takes forever!
November 29, 2002 - Tracey My daughter is 6 years old and was diagnosed with focal seizures 2 years ago. She currently takes 1000 mil of Depakote per day. She had been seizure free for approximately 1 year and just recently started having seizures again (that's when her doctor increased her from 3 pills twice a day to 4 tablets twice a day). It started as basic numbing of her mouth last week to full Jacksonion as of yesterday. It's quite frustrating as there seems no reason for these to start again and we were told there was a 99% chance of her growing out of these. When does this happen?
November 18, 2002 - Trent I'm not sure what my 15 year old daughter has. I (at first, two years back) thought it was just something she was doing because she got excited over something she saw on T.V. or while in the car with our other daughter (13) playing. My youngest daughter has ADHD and my eldest daughter has ADD. That was a fact proven by Kennedy Kreiger's Institute for us over 8 years ago in Maryland. But, within the last two years, my eldest daughter has started these weird "twitch spasms". They have gotten more prevalent. The spasms (I video'd and counted) were at 15/hour. Her arms, hands and jaw are all effected by the spasms and occasionally it goes to her legs. Her face gets all contorted, like a person is trying to force their jaw apart. Her fingers are the most effected when it happens and they go in all sorts of directions. Sometimes I feel like if she tries to straighten them back any further, they'll break off! It's really scaring me! Please help me figure out if this is epilectic, mild/major seizures, ADL...what? I'm really concerned. My wife and I, and both sides of our families don't have this condition. I may be off-topic here and advise me if I am, but please try to understand and see if someone can answer this for me and my wife. We love her so much and want to do what is best for her. No history of brain trauma has ever been encountered. I personally (when I was younger) was ADD and on Ritalin (1974-76). I add this so as to help towards any history thoughts and possible adverse effects from taking such meds at that age and possible long term effects. I graduated normally with the rest of my friends and did 4 years high school and graduated from College (2 year degree, Accounting/Data Processing), and now work at a VA Hospital . The meds didn't effect me educationally (in otherwords) in a bad way. I persoanally (when 14) had a bike accident that put me in an amnesic state for 2 days when the front wheel fell off the bike whilst going down a steep hill. I had head injuries, arm and leg and chest (not that this has anything to do with my daughter..but it might).
August 13, 2002 - Greg Kristy (July 30, 2002) my father is in a similar situation. He had suffered from a stroke and is now having seizures at approximately the same rate as your grandmother. The doctors have had no findings as to what could be causing them but I would appreciate any information about your grandmothers' doctors. Possibly they could talk about what they've both been doing.
August 13, 2002 - Shanon Does anyone have info or can someone help me? My boyfriend is 27 years old and has had 5 seizures within the span of 2 years. It has been 1 year since his last one. Is he an epileptic? He is currently taking 2000 mg of Valproic acid daily. The seizures are full grand-mal and he stops breathing. Is there something that we are missing? Before 2 years ago he had never had any.
July 30, 2002 - Kristie My Grandmother had a mild stroke back in January, 2002. This past weekend she was admitted into the hospital for another stroke, or so we all believed. After reading her MRI, the neurologist noted the only stroke showing was the one in January. In the mean time, my Grandmother is constantly having seizures (6-8) every 15 minutes. Does anyone know if her seizure could be causing her to become epileptic? Please share any information with me concerning this matter.
July 12, 2002 - Kathy Tonight my 14 year old daughter fainted. She fell back and hit the ceramic tile. Her eyes were opened and her head turned to the right and she proceeded to hum and shake for about 1 minute. When she came to, she didn't know what happened and her eyes were dilated. She remembers feeling like she was going to faint, but when she was out she said she thought she was dreaming in her bed. I am trying to figure out if this is a seizure. She has never had any other fainting episodes and I have never seen an actual seizure. Any help would be appreciated.
July 06, 2002 - Brion This is in respones to Betty's post. I am 24 years old and have had seizures for over 1-1/2 years. My seizures are not controlled by anticonvulsive medications such as dilantin, tegratal, or depakote. They can be mistaken for epilepsy and in fact are pseudoseizures. Check out http://hsc.usf.edu/~sbenbadi/PNES_CCF.html. This will take you to a site of the University of Florida with information and studies backed by the Cleveland Clinc. The only thing strange about your son's seizure is that he got out of the car. Those are usually psychogenic seizures or (pseudoseizures). I am not saying he is crazy don't get me wrong, I suffer from this type myself. They can be triggered by tramatic events in his life. Also check out the Cleveland Clinic's website. They are world renown in neurological studies. http://www.clevelandclinic.org/ As far as the lighting goes, some epileptic seizures can be triggered by strobing or flashing lights such as police or ambulance; strobe lights, and lighting have been associated with triggering seizures. There is a newer paper the ACC has put out, check it out, it might help. http://www.acc.org/media/releases/highlights/2000/july00/seizure.htm I hope any of this could be of some help.
May 14, 2002 - Betty This is in response to a question posted by Glen Austin regarding his roommate having focal seizures & if anyone had heard of someone having more than one. My son is 25 years old and has now had 3 grand-mal focal seizures in the past 3 years. He has a C1-2 fracture since 1997 due to motor vehicle accident with trauma to base of skull in USMC in 2/97. His 1st seizure was when he had the halo on for his broken neck (he is not paralyzed). This they said was caused from stress & injury from the USMC injury, not the broken neck. I wonder. Then we thought he had no more until next on 11/2000. We found out from his girlfiend that he had minor ones during his sleep periodically. Then the doctors after 7-8 months took him off his dilantin, and on 4/2002 he had another severe one while driving. Thanks to the fast thinking of his friend in the car, no one was hurt, the car was stopped in time. We found out during this exam with a new doctor that my son's friend in car at time of seizure said that my son just turned his head to the right, they thought he was going to say something to them, but he just glared at them for a very short time then he started stiffening up severely and bleeding severely from his mouth, all this lasted approx 15-30 minutes then he jumped out of car still not knowing anything, it was not until 1-1/12 hrs that he came out of it. The doctor the next day said after taking history, that his seizures are called focal seizures. We are in the process of getting all the necessary tests. He is now on a new drug taken once a day, but today he has started stuttering and eyes very glazed. To my knowledge this stuttering has never happened before and I am very close to him. Anyone out there know if the stuttering can be associated with this type of seizures? Another insight to this topic: the same weekend my son had his severe seizure, a family friend's 40 year old son and a co-worker's husband all had severe seizures (SAME DAY) the only thing in common with these 3 people was Houston was having a Really Horrible Lighting Storm that lasted several hours. I mean the lighting was horrendous. Has anyone else experienced seizures during this type of weather or is this just a coincidence?
November 05, 2001 - Robert I have some very relavent information concerning epileptic seizures caused from web pages created with Flash or Shockwave from Macromedia. According to a study done by my corporation (Ingen) we have found that there is an increase in the number of volitle epileptic seizures (T-clan) during periods of "Macromedia" useage. Our data shows that an increase in PTF levels alters the H-Receptor in the Codec blocks increasing the amount and intensity of chemical "storms" in the brain. In simpler terms, seizures have been linked to Flash or Software media. A simple solution we have found, is to decrease the frame rate resulting in a slower mental process which in turn will decrease PTF levels. It is important that everyone understands this connection between Macromedia's fram relay technology to the occurance of epileptic seizures.
October 26, 2001 - J. Welch Our local psychiatric unit has bought a new toy. While I acknowledge the benefits this treatment (rTMS) could provide, there is an alarming lack of knowledge about it locally. There was no consultation with local mental health groups and it seems to have been introduced via the back door. Magstim gave a brief presentation but the unit seems to be making it up as they go along. Any recent information, in any disipline would be useful. I've read most of the net info available but it's all very speculative. Does anyone know a Dr Fox or Rock based at Montreal? Please e-mail me if you have anything you think would be useful. Remember one quarter of the population suffer from mental distress every year. You could be next in line for this treatment as our goverment's mental health act goes unchallenged. Do we really want to be standing here in ten years time campaigning against this new wonder treatment, (which is being hailed as a possible treatment in the future for MS to dyslexia, epilepsy to pain and even a brain boost while studing for exams!) they way we are now with ECT? Knowledge is power. Utilise your power source
August 09, 2001 - Martha Could a MRI test cause magnetic stimulation such as in TMS? To David Hornung whose daughter has infantile spasms - have you considered treatment with ACTH?
February 23, 2000 - Lundin Does anybody have any information on epileptic seizures caused from web pages created with Flash or Shockwave from Macromedia?
November 22, 1999 - Jean Claude Joseph My daughter who is now 23 years old had a seizure while on the treadmill at her school gym. She is on phenobarbital at present. Her last seizure was 18 months ago. Can anyone out there tell me why this is still happening? Her doctor refuses to change her medication to a new and more efficient one. We send people to the moon but yet we cannot discover a good efficient medicine to combat this horrible disease. Please reply and tell me more about the effect on her life span, ability to have children, to drive etc. She is a second year law student.
August 06, 1999 - Glenn Austin My roommate suffered a stroke in Jan of 1998. Last week he suffered what is called a focal seizure. The doctor said it was due to scar tissue build up around the original stroke. It was so scary. What can I do if he has another one? They say he won't, but has anyone heard of someone who has had more than one focal seizure?
July 29, 1999 - David J. Hornung My 9 month old daughter has infantile spasms (type of epileptic seizure). Is she too young to receive magnetic therapy, and if not, considering this article, would the magentic therapy induce her to have more seizures?
July 17, 1999 - Jay Responding to Stephanie, the January, 1999 posted comment. I am a 22 year old right handed male (not sure what that has to do with it) and I have had similar seizures since I was 13. I'm really sorry but I have no information. It seems that every doctor that I have gone to knows nothing. My seizures occur right after I get up in the morning. I usually go anywhere from a month to 4 months without having one. Then suddenly I have another one. I don't know what to do either. At least I am not the only one.
March 29, 1999 - Abby It has been known for some time that TMS can cause epileptic seizures--it all depends on the strength and the number of repetitions used. I don't see why this is news.
January 08, 1999 - Stephanie My 21 year old boyfriend suffers from seizures and has been since the age of 10. He only has 1-2 seizures about every 4 weeks and they only occur after waking up from sleep. I was wondering if anyone had any information on these kind of seizures, or if someone has a similar case.
November 05, 1998 - Christina Does anyone have some info on epileptic seizures triggered by television or videogames and any opinion on it to help me w/a science project? (Like what happened in Japan w/the Pokeman show) Please post a reply here. Thanx!
June 24, 1997 - L. Brown I'm an R.N. that inadvertently ran into some research on seizures. All of the seizure victims suffered from vasospasm of the arteries at the base of the brain. Using medications that were more commonly used for cardiac disease, they were able to 'relax' these vasospasms and eventually retrain them.